Our National Prion Clinic (NPC)'s multidisciplinary team comprises consultant neurologists, clinical research fellows and clinical nurse specialists. We offer comprehensive assessment, diagnostic services and investigation for all forms of the disease including neuropsychology, neurophysiology, imaging, genetic testing, and tissue diagnosis. We are a mobile service that will visit patients throughout the UK at short notice, providing clinical expertise for a rare neurodegenerative disease.
Patients coming to London for an outpatient appointment will be seen at The National Hospital for Neurology and Neurosurgery at Cleveland Street.
Other referral information
Rapid access and one-stop clinics
All clinics are rapid access.
Access to patient results
GPs and local neurologists are informed of investigation results and outcomes of domiciliary visits or outpatient appointments via letter. They are welcome to phone the clinic to check on the progress of results if necessary.
Neurologists and GPs nationwide, families with a history of prion disease or neurological conditions, the National CJD Research and Surveillance Unit.
National Prion Clinic (NPC)
National Hospital for Neurology and Neurosurgery
London, WC1N 3BG
We provide diagnosis and care for all forms of prion disease:
- Inherited/familial prion disease
- Iatrogenic prion disease
- Sporadic CJD
- Variant CJD
We accept referrals for all undiagnosed neurological conditions if there is a suspicion of prion disease.
The clinic receives approximately 12 new referrals a month. Families and local teams are contacted on the day the referral is made and we aim to review new patients within a week.
Each patient is allocated a named nurse who will manage their care for the duration of their involvement in the clinic. Their nurse will be available via telephone or email, be present at their outpatient appointments, visit them at home, and attend case conferences as necessary.
All patients also have access to the support and advocacy service and can been seen by the clinical staff as an outpatient or in their own home.