Provide clinical expertise, support and information to patients and their families, including:
- Education on your condition and medications for inflammatory illnesses including side effects of medication
- Occasionally when GPs are unable to undertake blood test monitoring of medications, e.g. Methotrexate, MMF, Sulfasalazine, our clinical nurse specialists may undertake this role
- Teaching on self-injection techniques
- Advice and support on living with a chronic condition
- Telephone support service
- Outpatient clinic and day care reviews
Provide clinical expertise in specific treatment programmes, support, information and education to patients, parents and other professionals.
They provide the following:
Education and support via outpatient appointments (either face to face or telephone) for all patients in the adolescent clinic as necessary
- Support accessing local physiotherapy services
- Help with talking to school, college or university about support you might need, for example: rest breaks or extra-time in assessments and exams, using a laptop or scribe if handwriting is difficult and with school if necessary to ensure good understanding of your condition
The physiotherapy team may also refer you on to hand therapy or podiatry as necessary
Provides support during the transition of your care from Great Ormond Street Hospital and UCLH.
They provide the following:
- A meeting with you during your transition clinic appointment at GOSH to introduce the clinic at UCLH and provide an information pack
- Their contact details in case you have any further questions after that meeting
- A link to the virtual tour of UCLH
Provides young person and family support and advice. Referrals are made via the Rheumatology team.
